A Leading Center for the Study and Treatment of Hemophilia

This April 17th, we are invited to reflect on the lives of those who face a hemophilia diagnosis every day, in commemoration of World Hemophilia Day. In Holguin, the care provided to children with hemophilia stands out for its commitment and dedication at the Octavio de la Concepción de la Pedraja Pediatric Hospital.

This center has become a leading center for the study and treatment of this condition. Offering hope and a better quality of life to many children living with this bleeding disorder.

Moreover the arrival in 2019 of high-tech equipment, donated by the Novo Nordisk Haemophilia Foundation. It has transformed the diagnostic landscape in our province. With equipment such as the Aggregometer and the Coagulometer. Healthcare professionals can perform specialized studies with a precision comparable to that of developed countries.

This technology not only improves diagnosis but also guarantees comprehensive treatment. Vital for preventing debilitating consequences from an early age.

Hemophilia is not an easy disease to treat. The lack of a known cure means that patients must manage their condition throughout their lives. In children, the most common manifestations. Include spontaneous bruising, frequent nosebleeds, and prolonged bleeding after minor injuries.

Therefore, early diagnosis, correct treatment, and preventive medication are essential. So that patients can lead as normal a life as possible and their quality of life is not affected. The complexity arises from the appearance of extensive bruising. Prolonged bleeding within muscles and joints after cuts, tooth extractions, or surgery—manifestations that can even lead to disabilities.

Also these symptoms can be alarming for both children and their families. Who often face a sea of uncertainty and worry.

The usual treatment consists of administering factor VIII concentrates. Which help improve clotting and reduce the risk of bleeding. However, the lack of awareness surrounding hemophilia can be a significant obstacle. Many people are still unaware of how this disease affects those who suffer from it and the measures that can be taken to support patients and their families.

So this World Hemophilia Day, let’s not only celebrate the advances in treatment and diagnosis, but also call for greater education and awareness about this condition. Empathy and understanding are essential to creating an environment where patients feel supported and understood.

In addition to treating leukemias, lymphomas, and other malignant tumors. Hematology also diagnoses and treats patients with benign conditions. Such as hemophilia, anemias, coagulation disorders, and rare, undiagnosed diseases.

In this region, the work carried out by the Hematology Department at the Pediatric Hospital is an example of what can be achieved with dedication. However, because it is a little-known disease, it is crucial to raise social awareness of the care and attention received by those who suffer from it. So that people understand that it not only represents a medical challenge, but also an opportunity to demonstrate solidarity and humanity.

Maylín Betancourt Verdecia
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