For 25 years of uninterrupted work, the Center for Research and Rehabilitation of Hereditary Ataxias (Cirah in the Spanish acronym). It is located in the province of Holguin and the only one of its kind in Cuba acts in favor of the quality of life of patients diagnosed with this pathology.
Dr. Jacqueline Medrano Montero, director of the institution, told ACN that Spinocerebellar Ataxias (SCA) are considered orphan conditions of treatment. Therefore the medications are aimed at reducing symptoms.
As a result of clinical trials for type II of this disease, the most prevalent in the territory. Zinc Sulfate, vitamin therapy from B Complex, vitamins C and E and others that depend on the particular characteristics of each patient are currently used, she said.
The expert specified that rehabilitation techniques are also used, with a comprehensive approach. Which improve motor functions, gait, coordination and balance by 86 percent, among the main affected areas.
In terms of research, the thematic lines aim to delay the evolutionary course of the condition. Also provide guidance to the families of patients and carriers of the autosomal dominant gene, who have up to a 50 percent chance of developing SCA2.
The Cirah also stands out for the training of specialized medical and technical personnel and socializing its results from publications in high–impact journals. Both in English and Spanish, Medrano said.
Holguin concentrates the largest number of patients with SCA2 worldwide. Futhermore with a prevalence rate of 8.91 per 100 thousand inhabitants. Therefore it constitutes a health problem for the country because it is hereditary and incurable.
In conclusion in March 2000 and at the initiative of the historical leader of the Cuban Revolution Fidel Castro. Cirah was founded to provide centralized care to this vulnerable population group. And promote programs and research aimed at delaying the onset of this pathology.
With information from Agencia Cubana de Noticias/ Translated by Radio Angulo
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